Does respite care address the needs of palliative care service users and carers? Their perspectives and experiences

Wolkowski, Anna and Carr, Susan (2017) Does respite care address the needs of palliative care service users and carers? Their perspectives and experiences. International Journal of Palliative Nursing, 23 (4). pp. 174-185. ISSN 1357-6321

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Official URL: https://doi.org/10.12968/ijpn.2017.23.4.174

Abstract

Aim:
To establish whether respite care addresses the needs of palliative care service users and carers.

Background:
Respite care is often described in UK policy and guidance as a key need to providing support for this group and yet little is known about it and there is a lack of research to support its efficacy.

Design:
The approach was qualitative and the methodology was interpretive. The method used was constructivist grounded theory.

Methods:
Data collection was carried out by unstructured informal interview with three couples and two bereaved carers who had experienced hospice respite care.

Results:
Findings showed that respite care is valued by palliative care service users and carers although there are some fundamental tensions in service models which limit its potential.

Conclusion:
A reframing of respite care as an empathic response within a new palliative care approach is proposed. Within this, the centrality of the relationship is reinforced.

Item Type: Article
Uncontrolled Keywords: respite care, Constructivist grounded theory, social networks, hospice care
Subjects: B700 Nursing
B900 Others in Subjects allied to Medicine
Department: Faculties > Health and Life Sciences > School of Health, Community and Education Studies > Public Health and Wellbeing
Depositing User: Ay Okpokam
Date Deposited: 31 May 2017 08:58
Last Modified: 31 May 2017 11:47
URI: http://nrl.northumbria.ac.uk/id/eprint/30907

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