Patients' perspective on pulmonary rehabilitation: experiences of European and American individuals with chronic respiratory diseases

Rochester, Carolyn, Vogiatzis, Ioannis, Powell, Pippa, Masefield, Sarah and Spruit, Martijn (2018) Patients' perspective on pulmonary rehabilitation: experiences of European and American individuals with chronic respiratory diseases. ERJ Open Research, 4 (4). 00085. ISSN 2312-0541

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Official URL: http://dx.doi.org/10.1183/23120541.00085-2018

Abstract

Despite the fact that pulmonary rehabilitation (PR) is the most powerful nonpharmacological intervention to improve the symptoms, exercise capacity and quality of life of people living with chronic lung disease [1], fewer than 2% of eligible patients enrol [2, 3]. While preparing a joint American Thoracic Society (ATS)/European Respiratory Society (ERS) Policy Statement on pulmonary rehabilitation [4], we developed a survey to better understand patients' perspectives on PR, and to identify challenges faced both by patients who have taken part in PR and those who might be eligible but have not had the opportunity. The survey was disseminated via the European Lung Foundation/ERS and ATS Public Advisory Roundtable professional patient networks, and via the COPD Foundation and Pulmonary Fibrosis Foundation to patients with a wide range of chronic lung diseases. The survey was available online from July, 2014 to November, 2014 in 10 languages (Dutch, English, Flemish, French, German, Greek, Italian, Polish, Portuguese and Spanish). Responses were received from 1685 people (73% female) with self-reported chronic lung disease in 29 countries (USA: 71.1%; Europe: 27.4%; others: 1.5%) and were included in the analyses (table 1).

Item Type: Article
Subjects: A300 Clinical Medicine
C600 Sports Science
Department: Faculties > Health and Life Sciences > Sport, Exercise and Rehabilitation
Depositing User: Paul Burns
Date Deposited: 12 Dec 2018 14:31
Last Modified: 26 Mar 2019 11:45
URI: http://nrl.northumbria.ac.uk/id/eprint/37209

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