Who cares? Managing obligation and responsibility across the changing landscapes of informal dementia care

Egdell, Valerie (2013) Who cares? Managing obligation and responsibility across the changing landscapes of informal dementia care. Ageing & Society, 33 (05). pp. 888-907. ISSN 0144-686X

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Official URL: http://dx.doi.org/10.1017/S0144686X12000311


This paper explores the different ways in which informal carers for people with dementia negotiate their care-giving role across the changing organisational and spatial landscape of care. In-depth qualitative data are used to argue that the decisions of carers are socially situated and the result of negotiations involving individuals, families and wider cultural expectations. These decisions affect where care occurs. In addressing these issues this paper draws attention to the lack of choice some carers may have in taking on the care-giving role; how and why carers draw upon support; and the different expectations of the care-giver's capabilities across the different sites of care, specifically at home and in nursing homes. It concludes that research and policy attention should focus on how the expectations about the role and abilities of carers are affected by where, and how, care is delivered. In doing so this paper contributes to the emerging health geography literature on care-giving as well as developing the spatial perspective in the established gerontological literature.

Item Type: Article
Uncontrolled Keywords: dementia, informal care, landscapes of care, obligation, responsibility
Subjects: B900 Others in Subjects allied to Medicine
L400 Social Policy
Department: Faculties > Business and Law > Newcastle Business School > Business and Management
Depositing User: Paul Burns
Date Deposited: 14 Dec 2018 18:21
Last Modified: 14 Dec 2018 18:21
URI: http://nrl.northumbria.ac.uk/id/eprint/37301

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