User Involvement and Identity: Bringing Ourselves Out of the Half-Shadows

Cameron, Colin, Moore, Michele and Nutt, Ann (2019) User Involvement and Identity: Bringing Ourselves Out of the Half-Shadows. Social Work and Social Sciences Review. ISSN 0953-5225 (In Press)

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Abstract

This paper addresses the theme of research with hard to reach populations through the experience of disabled researchers who are positioned as ‘hard to reach’ ourselves. We report on the process and findings of research conducted by ‘hard to reach’ disabled people with ‘hard to reach’ disabled people. We explain the origins and significance of our project which explored disabled people’s experiences of being service-user representatives in order to build understanding of how we are often overlooked and marginalised in this role. Power relationships which shape the reality of disabled people’s participation in decision-making processes within services are explored. Our findings show that when service user involvement is respectful and inclusive this has a positive and mutually beneficial impact for professionals and service users. We suggest strategies that will help bring disabled people out of the half-shadows both within, and beyond, our user representative roles.

Item Type: Article
Uncontrolled Keywords: Research access, visibility, service users, user-led research, experience
Subjects: L400 Social Policy
L500 Social Work
Department: Faculties > Health and Life Sciences > Social Work, Education and Community Wellbeing
Related URLs:
Depositing User: Paul Burns
Date Deposited: 15 Jul 2019 17:15
Last Modified: 11 Oct 2019 10:10
URI: http://nrl.northumbria.ac.uk/id/eprint/40032

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