Teenagers' and parents' views on a short-break service for children with life-limiting conditions: A qualitative study

Swallow, Veronica Mary, Forrester, Tracey and MacFadyen, Ann (2012) Teenagers' and parents' views on a short-break service for children with life-limiting conditions: A qualitative study. Palliative Medicine, 26 (3). pp. 257-267. ISSN 0269-2163

Full text not available from this repository. (Request a copy)
Official URL: http://dx.doi.org/10.1177/0269216311401947

Abstract

Few opportunities exist outside the home for children and teenagers with life-limiting conditions to have a break in a setting specifically designed and adequately staffed and resourced to meet their complex clinical, practical and emotional needs; until recently provision focused primarily on providing respite for parents/carers. Based on policy recommendations, a short-break service was established with the aim of working in partnership with families and voluntary and statutory agencies to provide a fun break for children and teenagers with life-limiting conditions and complement the range of services available. This qualitative study used interviews and focus groups to determine teenagers’ and parents’ views of the service. Three themes emerged: accessibility and communication; needs and boundaries; and shaping the service. Teenagers enjoyed regular planned residential breaks, access to skilled staff and bespoke facilities to support their needs, opportunities to meet others with life-limiting conditions and fun time away from home, thereby giving parents peace of mind, a regular planned break from care-giving, opportunities to meet other parents and to spend exclusive time with their other children. If specialist short-break services become part of the national range of services available, children and teenagers with life-limiting conditions and their parents and siblings could all benefit.

Item Type: Article
Uncontrolled Keywords: Children and teenagers, life limiting, life shortening, respite, short breaks
Subjects: B700 Nursing
Department: Faculties > Health and Life Sciences > School of Health, Community and Education Studies > Healthcare
Depositing User: Ay Okpokam
Date Deposited: 19 Jan 2012 13:46
Last Modified: 10 Aug 2015 11:35
URI: http://nrl.northumbria.ac.uk/id/eprint/4588

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year

View more statistics


Policies: NRL Policies | NRL University Deposit Policy | NRL Deposit Licence