Promissory Ethical Regimes: Publics and Public Goods in Genome Editing for Human Health

Wienroth, Matthias and Scully, Jackie Leach (2021) Promissory Ethical Regimes: Publics and Public Goods in Genome Editing for Human Health. Science and Public Policy, 48 (6). pp. 788-798. ISSN 0302-3427

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Official URL: https://doi.org/10.1093/scipol/scab052

Abstract

This paper analyses promissory discourse for genome editing and human health in the UK, attending to the articulation of public goods and their beneficiary publics. Focusing on promissory reasoning about an emerging technology field as anticipatory and ethical considerations as integral to such debates, the notion of ethical regime as a mode of governance is applied to the concept of promissory regime. By analyzing key documents and interviews with opinion leaders—thus focusing on the discursive dimension—an enabling promissory ethical regime for genome editing and its contestation are identified. This regime posits scientific knowledge production now, and improved treatment or prevention of hereditary diseases later, as key goods of genome editing for human health and as a sociotechnical project worthy of support. Specific publics are created as beneficiaries. These publics and goods play out as ethical rationales for the promissory governance of the emerging field of human genome editing.

Item Type: Article
Additional Information: Funding information: This work was supported by a School of Geography, Politics and Sociology Small Research Grant, Newcastle University, UK.
Uncontrolled Keywords: ethical regime; genome editing; governance; promissory discourse; public good; publics
Subjects: B900 Others in Subjects allied to Medicine
L900 Others in Social studies
Department: Faculties > Arts, Design and Social Sciences > Social Sciences
Depositing User: Elena Carlaw
Date Deposited: 08 Jun 2020 15:39
Last Modified: 03 Aug 2023 08:00
URI: https://nrl.northumbria.ac.uk/id/eprint/43374

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