Improving participation outcomes and interventions in neurodisability: co-designing future research

McAnuff, Jennifer, Brooks, R., Duff, C., Quinn, M., Marshall, J. and Kolehmainen, N. (2017) Improving participation outcomes and interventions in neurodisability: co-designing future research. Child: Care, Health and Development, 43 (2). pp. 298-306. ISSN 0305-1862

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Official URL: https://doi.org/10.1111/cch.12414

Abstract

There is an urgent, agreed need to improve participation outcomes and interventions for children and young people with neurodisability. We worked together with service users and providers to design research into participation outcomes and interventions in neurodisability. We built on existing evidence about participation outcomes and interventions and the WHO International Classification of Functioning, Disability and Health. We: (1) specified seven participation outcome categories for measurement; (2) prioritized these for improvement: self‐care, friends and social, and physical activity ranked the highest; (3) identified 11 potential intervention categories for targeting the top priority, self‐care, through eight hypothesized change mechanisms and agreed for the interventions to be delivered as a ‘Menu of Interventions’ for personalized self‐care support; and (4) designed a before‐and‐after mixed methods feasibility study to evaluate the Menu with children and young people (0–12 years) and their parents and therapists.

Item Type: Article
Uncontrolled Keywords: participation, patient and public involvement, self‐care, user involvement
Subjects: A100 Pre-clinical Medicine
B900 Others in Subjects allied to Medicine
C800 Psychology
L900 Others in Social studies
Department: Faculties > Health and Life Sciences > Social Work, Education and Community Wellbeing
Depositing User: John Coen
Date Deposited: 14 May 2021 14:52
Last Modified: 31 May 2021 14:38
URI: http://nrl.northumbria.ac.uk/id/eprint/46178

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