Up-to-the-Minute Privacy Policies via Gossips in Participatory Epidemiological Studies

Sharma, Aakash, Nilsen, Thomas Bye, Czerwinska, Katja Pauline, Onitiu, Daria, Brenna, Lars, Johansen, Dag and Johansen, Håvard D. (2021) Up-to-the-Minute Privacy Policies via Gossips in Participatory Epidemiological Studies. Frontiers in Big Data, 4. p. 624424. ISSN 2624-909X

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Official URL: https://doi.org/10.3389/fdata.2021.624424

Abstract

Researchers and researched populations are actively involved in participatory epidemiology. Such studies collect many details about an individual. Recent developments in statistical inferences can lead to sensitive information leaks from seemingly insensitive data about individuals. Typical safeguarding mechanisms are vetted by ethics committees; however, the attack models are constantly evolving. Newly discovered threats, change in applicable laws or an individual's perception can raise concerns that affect the study. Addressing these concerns is imperative to maintain trust with the researched population. We are implementing Lohpi: an infrastructure for building accountability in data processing for participatory epidemiology. We address the challenge of data-ownership by allowing institutions to host data on their managed servers while being part of Lohpi. We update data access policies using gossips. We present Lohpi as a novel architecture for research data processing and evaluate the dissemination, overhead, and fault-tolerance.

Item Type: Article
Additional Information: Funding information: This work was funded in part by Research Council of Norway project numbers 263248 and 275516. We thank Jon Foss Mikalsen for his support in the development of Lohpi.
Uncontrolled Keywords: compliance, privacy, big data processing, research data, privacy policies, gossip, data sharing, open data
Subjects: G200 Operational Research
G400 Computer Science
G500 Information Systems
Department: Faculties > Business and Law > Northumbria Law School
Depositing User: Elena Carlaw
Date Deposited: 01 Jun 2021 12:26
Last Modified: 01 Jun 2021 12:30
URI: http://nrl.northumbria.ac.uk/id/eprint/46306

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