The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners

Killen, Alison, Flynn, Darren, O'Brien, Nicola and Taylor, John-Paul (2021) The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners. Dementia. p. 147130122110285. ISSN 1471-3012 (In Press)

[img]
Preview
Text (Advance online version)
14713012211028501.pdf - Published Version
Available under License Creative Commons Attribution 4.0.

Download (1MB) | Preview
Official URL: https://doi.org/10.1177/14713012211028501

Abstract

OBJECTIVES: Psychosocial support for people with dementia with Lewy bodies (DLB) and family care partners is frequently lacking, despite the need expressed by those with lived experience. Our objective was to examine the feasibility and acceptability of an intervention designed to build coping capability.

DESIGN: The design was non-randomised with all participants receiving the intervention.

SETTING: The setting was a Memory Assessment and Management Service in the Northeast of England.

PARTICIPANTS: Participants comprised 19 dyads consisting of a person with DLB and a family care partner.

INTERVENTION: The intervention was group-based, with weekly sessions attended for up to four successive weeks. It was informed by Social Cognitive Theory.

MEASUREMENTS: Data were collected on recruitment, attendance and attrition, self-efficacy, mood, stress and participant experience.

RESULTS: Recruitment was achieved with minimal attrition and three successive groups were delivered. Care partners felt more in control and able to cope in at least 3 of 13 areas with 73% feeling this way in eight or more areas. Three themes were identified from post-intervention interviews: people like us, outcomes from being a group member and intervention design.

CONCLUSIONS: A DLB-specific group intervention is acceptable to people with DLB and family care partners, and recruitment is feasible within a specialist service. Participation may enhance understanding of this condition and reduce social isolation. It may improve care partners' coping capability particularly if targeted towards those with low prior understanding of DLB and more stress. Means of evaluating outcomes for people with DLB need further development.

Item Type: Article
Uncontrolled Keywords: Lewy body dementia, Lewy bodies, dementia with Lewy bodies, carer support, group intervention, peer support, dementia support
Subjects: C800 Psychology
L400 Social Policy
Department: Faculties > Health and Life Sciences > Psychology
Faculties > Health and Life Sciences > Nursing, Midwifery and Health
Depositing User: John Coen
Date Deposited: 30 Jun 2021 08:04
Last Modified: 10 Nov 2021 10:40
URI: http://nrl.northumbria.ac.uk/id/eprint/46562

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year

View more statistics