Health promotion challenges for young adults living with intellectual disability and type 1 diabetes

Marks, Anne L, Mahoney, Natasha, Chen, Yu-Wei, Cordier, Reinie, Buchanan, Angus and Wilson, Nathan J (2021) Health promotion challenges for young adults living with intellectual disability and type 1 diabetes. Journal of Intellectual Disabilities. p. 174462952110327. ISSN 1744-6295 (In Press)

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Health promotion challenges for young adults living with intellectual disability and type 1 diabetes 20_11_20.pdf - Accepted Version

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Official URL: https://doi.org/10.1177/17446295211032767

Abstract

Background: Self-management of type 1 diabetes mellitus (T1DM) can be challenging for people with intellectual disability. Often, parents provide health support due to lack of appropriate services outside the home. The study aim was to identify barriers and facilitators to T1DM self-management for young adults with intellectual disability and the implications for health promotion.

Methods: Five male participants with intellectual disability, aged 17–26 years, and seven parents were interviewed between October 2017 and February 2019. Interview data were descriptively analysed.

Findings: Two categories for barriers and facilitators were identified: 1) Diabetes self-management is complex (carbohydrate counting, blood glucose level monitoring, insulin therapy); 2) support for diabetes care (reliance on parents and carers, the National Disability Insurance Scheme, mainstream diabetes service support).

Conclusions: Parents are critical for the support of people with intellectual disability and T1DM in the absence of disability staff with appropriate health skills.

Item Type: Article
Additional Information: Funding Information: This research was funded by a grant from The Endeavour Foundation Endowment Challenge Fund.
Uncontrolled Keywords: parenting, inclusion, nursing, young adults, type 1 diabetes mellitus
Subjects: B900 Others in Subjects allied to Medicine
C800 Psychology
Department: Faculties > Health and Life Sciences > Social Work, Education and Community Wellbeing
Depositing User: John Coen
Date Deposited: 24 May 2022 11:54
Last Modified: 24 May 2022 11:54
URI: http://nrl.northumbria.ac.uk/id/eprint/49183

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