'Just when you think you got it all sorted..': Parental dilemmas in relation to the developing sexuality of young profoundly disabled people

Swain, John and Thirlaway, Carole (1996) 'Just when you think you got it all sorted..': Parental dilemmas in relation to the developing sexuality of young profoundly disabled people. British Journal of Learning Disabilities, 24 (2). pp. 58-64. ISSN 1354-4187

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Abstract

Sexuality is a neglected topic in the literature focusing on young profoundly disabled people. For parents and formal carers who work with parents and young people themselves, however, sexual development and identity pose fraught and complex challenges in understanding and addressing young people's needs. This paper is based on qualitative research which explored parents' experiences, feelings and understandings and the responses of formal carers to parents' perspectives. The parents faced contradictory pressures to deny and not to deny sexuality. Formal carers drew on beliefs about 'good parenting' in reactions to the position of parents. Both groups confronted real dilemmas with young people who are incapable, and may never be capable, of informed consent or self-determination in sexual relationships.

Item Type:	Article
Subjects:	B700 Nursing L500 Social Work
Department:	Faculties > Health and Life Sciences > Nursing, Midwifery and Health
Depositing User:	Becky Skoyles
Date Deposited:	17 Feb 2015 16:33
Last Modified:	12 Oct 2019 15:26
URI:	http://nrl.northumbria.ac.uk/id/eprint/18615

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