The views of carers about support for their family member with an intellectual disability: with a focus on Positive Behavioural Approaches

McKenzie, Karen, Hardy, Claire, Whelan, Kathryn, McNall, Anne, Noone, Steve and Chaplin, Jill (2018) The views of carers about support for their family member with an intellectual disability: with a focus on Positive Behavioural Approaches. Health & Social Care in the Community, 26 (1). e56-e63. ISSN 1365-2524

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Abstract

This qualitative study explored the views of family carers about the support that their adult children with an intellectual disability had received in relation to their behaviour that challenged. There was a particular focus on positive behavioural support (PBS), although some participants spoke more generally in terms of positive approaches. Semi-structured interviews with eight family carers were analysed using inductive thematic analysis. Four key themes were identified. Good support, of which PBS was an example, was seen as both having reduced behaviours that challenged and having a wider positive impact on the quality of life of the individual and their families. Key features highlighted were: technical knowledge and skill; a strong value base of warmth, acceptance, and respect; a collaborative, consistent approach; open communication; and the extension of support to the family carer when needed. It was recognised that there is a need for broad systemic change and for the application of a workforce development model that takes account of the needs of staff, carers, and those working in wider systems that have contact with people with an intellectual disability.

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