Longitudinal falls data in Parkinson’s disease: feasibility of fall diaries and effect of attrition

Hunter, Heather, Rochester, Lynn, Morris, Rosie and Lord, Sue (2018) Longitudinal falls data in Parkinson’s disease: feasibility of fall diaries and effect of attrition. Disability and Rehabilitation, 40 (19). pp. 2236-2241. ISSN 0963-8288

Hunetr et al_2018_Longitudinal falls data in Parkinson's disease_D&R.pdf - Accepted Version

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Official URL: https://doi.org/10.1080/09638288.2017.1329357


Background: Identifying causes of falls for people with Parkinson’s disease has met with limited success. Prospective falls measurement using the “gold standard” approach is challenging. This paper examines the process and outcomes associated with longitudinal falls reporting in this population.

Methods: Participants were recruited from ICICLE-GAIT (a collaborative study with ICICLE-PD; an incident cohort study). Monthly falls diaries were examined over 48 months for accuracy of data and rate of attrition. To further inform analysis, characteristics of participants with 36-month completed diaries were compared with those who did not complete diaries.

Results: One hundred and twenty-one participants were included at baseline. By 12 months, falls diary data had reduced to 107 participants; to 81 participants by 36 months; and to 59 participants by 48 months. Key reasons for diary attrition were withdrawal from ICICLE-gait (n = 16) (13.2%), and noncompliance (n = 11) (9.1%). The only significant difference between the completed and non-completed diary groups was age at 36 months, with older participants being more likely to send in diaries.

Conclusions: Prospective falls data is feasible to collect over the long term. Attrition rates are high; however, participants retained in the study are overall representative of the total falls diary cohort.

Item Type: Article
Uncontrolled Keywords: Prospective, methodology, resources, older adults, neurological
Subjects: B100 Anatomy, Physiology and Pathology
B300 Complementary Medicine
B900 Others in Subjects allied to Medicine
Department: Faculties > Health and Life Sciences > Sport, Exercise and Rehabilitation
Depositing User: Elena Carlaw
Date Deposited: 13 Mar 2020 11:30
Last Modified: 31 Jul 2021 19:03
URI: http://nrl.northumbria.ac.uk/id/eprint/42469

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