Parkinson, Mark, Carr, Susan and Abley, Clare (2022) Facilitating social coping-‘seeking emotional and practical support from others’-as a critical strategy in maintaining the family care of people with dementia. Health & Social Care in the Community, 30 (2). pp. 558-569. ISSN 0966-0410
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Abstract
The aim of this study was to identify how the family care of people living with dementia could be supported to make reliance on family care sustainable in the long term despite the impact of stress. A Realist Evaluation (Pawson & Tilley, 1997) was conducted to investigate this aim. An initial review established ‘coping’ as a primary means of mediating stressors associated with caregiving. However, there was a need to specify which coping approaches/strategies are most effective. In-depth interviews were conducted with a purposive sample of family carers (n = 18) in a suburb in North East England from 2016 to 2017. Analysis of the data revealed ‘social coping’ (SC) that included an emotional support component as a critical mediator of family carer stress. Several key hindrances to the utilisation of SC, including underpinning causal factors, are explicated. Ways in which these hindrances might be overcome are discussed and guidelines introduced for how family carers, formal providers and practitioners can facilitate SC as a critical coping strategy in sustaining the family care of people with dementia over the long term.
| Item Type: | Article |
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| Additional Information: | Funding information: Dr. Mark Parkinson led the project which this paper is based on while employed on a PhD studentship. The studentship was funded by Fuse, the Centre for Translational Research in Public Health (www.fuse.ac.uk). Fuse is a UK Clinical Research Collaboration Centre for Translational Research in Public Health and NIHR School for Public Health Research (SPHR) Centre of Excellence. Funding for Fuse from the British Heart Foundation, Cancer Research UK, Medical Research Council, the National Institute for Health Research, under the auspices of the UKCRC, is gratefully acknowledged. The views expressed in this paper do not necessarily represent those of the funders or UKCRC. The funders had no role in study design, data collection, analysis or decision to prepare or publish the manuscript. The authors also acknowledge the kind support and involvement of all the family carers who made a valuable contribution to this research. |
| Uncontrolled Keywords: | coping strategies, dementia, family carers, Realist Evaluation, social coping, sustaining family care |
| Subjects: | B700 Nursing B900 Others in Subjects allied to Medicine L500 Social Work |
| Department: | Faculties > Health and Life Sciences > Social Work, Education and Community Wellbeing |
| Depositing User: | Elena Carlaw |
| Date Deposited: | 22 Sep 2020 09:01 |
| Last Modified: | 03 Mar 2022 15:46 |
| URI: | http://nrl.northumbria.ac.uk/id/eprint/44226 |
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