Perspectives on paediatric sleep disordered breathing in the UK: A qualitative study

Haighton, Catherine, Watson, Rose Mary, Wilson, Janet A. and Powell, Steven (2022) Perspectives on paediatric sleep disordered breathing in the UK: A qualitative study. Journal of Laryngology and Otology, 136 (6). pp. 520-526. ISSN 0022-2151

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Abstract

Background: There is limited understanding of treatment pathways for paediatric sleep disordered breathing. We explore current UK pathways and what is important to well-being for parents/children.
Methods: In-depth qualitative interviews (n=22) with parents of children (2-9 years), with symptoms of sleep disordered breathing referred to a regional ENT clinic (n=11), General Practitioners who might refer these children to ENT (n=5), Hospital Doctors involved in treating these children (n=6). Interviews were audio recorded, transcribed verbatim, anonymised, and analysed thematically.
Results: General Practitioners rarely identify seeing paediatric sleep disordered breathing; conversely Hospital Doctors identify unsuspected issues. Parents are worried their child will stop breathing. Routes to referral/diagnosis are not straightforward. Modern technology can aid investigation/diagnosis. Patient weight is an issue for General Practitioners and Hospital Doctors; adenotonsillectomy is the treatment of choice; information on paediatric sleep disordered breathing is needed.
Conclusions: Guidelines for the management of paediatric sleep disordered breathing are needed.

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