Ayres, Michael, Parr, Jeremy R., Rodgers, Jacqui, Mason, David, Avery, Leah and Flynn, Darren (2018) A systematic review of quality of life of adults on the autism spectrum. Autism, 22 (7). pp. 774-783. ISSN 1362-3613
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Abstract
Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual’s quality of life. No systematic review of quality of life of adults on the autism spectrum has been conducted. Our objectives were as follows: (1) review the evidence about quality of life for adults on the autism spectrum; (2) critically appraise current practice in assessing quality of life of adults on the autism spectrum. We searched bibliographic databases and other literature to identify studies using a direct measure of quality of life of adults on the autism spectrum. Hand searching of reference lists, citation searching and personal communication with field experts were also undertaken. In total, 827 studies were identified; 14 were included. Only one quality of life measure designed for use with the general autism spectrum population was identified. Quality of life of adults on the autism spectrum is lower than that of typically developing adults, when measured with tools designed for the general population. There are no comprehensive autism spectrum disorder–specific quality of life measurement tools validated for use with representative samples of adults on the autism spectrum. There is a pressing need to develop robust measures of quality of life of autistic adults.
| Item Type: | Article |
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| Additional Information: | Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship and/or publication of this article: David Mason’s research post was funded by the Research Autism and the Newcastle University research programme on autism life course and ageing (http://research.ncl. ac.uk/adultautismspectrum/) was funded by the autism research charity Autistica (https://www.autistica.org.uk/). |
| Uncontrolled Keywords: | adults, autism spectrum disorders, measurement, quality of life |
| Subjects: | B900 Others in Subjects allied to Medicine C800 Psychology |
| Department: | Faculties > Health and Life Sciences > Nursing, Midwifery and Health |
| Depositing User: | John Coen |
| Date Deposited: | 15 Nov 2021 10:09 |
| Last Modified: | 15 Nov 2021 10:15 |
| URI: | http://nrl.northumbria.ac.uk/id/eprint/47719 |
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