Trajectories of health-related quality of life among people with a physical disability and/or chronic disease during and after rehabilitation: a longitudinal cohort study

Seves, B. L., Hoekstra, F., Hettinga, Florentina, Dekker, R., van der Woude, L. H. V. and Hoekstra, T. (2021) Trajectories of health-related quality of life among people with a physical disability and/or chronic disease during and after rehabilitation: a longitudinal cohort study. Quality of Life Research, 30 (1). pp. 67-80. ISSN 0962-9343

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Official URL: https://doi.org/10.1007/s11136-020-02647-7

Abstract

Purpose: To identify Health-related Quality of Life (HR-QoL) trajectories in a large heterogeneous cohort of people with a physical disability and/or chronic disease during and after rehabilitation and to determine which factors before discharge are associated with longitudinal trajectory membership. Methods: A total of 1100 people with a physical disability and/or chronic disease were included from the longitudinal cohort study Rehabilitation, Sports and Active lifestyle. All participants participated in a physical activity promotion programme in Dutch rehabilitation care. HR-QoL was assessed using the RAND-12 Health Status Inventory questionnaire at baseline (T0: 3–6 weeks before discharge) and at 14 (T1), 33 (T2) and 52 (T3) weeks after discharge from rehabilitation. A data-driven approach using Latent Class Growth Mixture modelling was used to determine HR-QoL trajectories. Multiple binomial multivariable logistic regression analyses were used to determine person-, disease- and lifestyle-related factors associated with trajectory membership. Results: Three HR-QoL trajectories were identified: moderate (N = 635), high (N = 429) and recovery (N = 36). Trajectory membership was associated with person-related factors (age and body mass index), disease-related factors (perceived fatigue, perceived pain and acceptance of the disease) and one lifestyle-related factor (alcohol consumption) before discharge from rehabilitation. Conclusions: Most of the people who participated in a physical activity promotion programme obtained a relatively stable but moderate HR-QoL. The identified HR-QoL trajectories among our heterogeneous cohort are disease-overarching. Our findings suggest that people in rehabilitation may benefit from person-centred advice on management of fatigue and pain (e.g. activity pacing) and the acceptance of the disability.

Item Type: Article
Additional Information: Funding information: This study was funded by the Dutch Ministry of Health, Welfare and Sports (Grant No. 319758), Stichting Beatrixoord Noord-Nederland (grant date 19-2-2018) and a personal grant received from the University Medical Center Groningen, and supported by the Knowledge Center of Sport Netherlands and Stichting Special Heroes Nederland (before January 2016: Stichting Onbeperkt Sportief).
Uncontrolled Keywords: Active lifestyle, Activity pacing, Health promotion, Latent class growth (mixture) models, Quality of life, Rehabilitation
Subjects: B100 Anatomy, Physiology and Pathology
C600 Sports Science
Department: Faculties > Health and Life Sciences > Sport, Exercise and Rehabilitation
Depositing User: Rachel Branson
Date Deposited: 20 Apr 2022 13:18
Last Modified: 20 Apr 2022 13:30
URI: http://nrl.northumbria.ac.uk/id/eprint/48923

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