Cullington, Helen, Kitterick, Padraig, Darnton, Philippa, Finch, Tracy, Greenwell, Kate, Riggs, Carol, Weal, Mark, Walker, Dawn-Marie and Sibley, Andrew (2022) Telemedicine for Adults With Cochlear Implants in the United Kingdom (CHOICE): Protocol for a Prospective Interventional Multisite Study. JMIR Research Protocols, 11 (4). e27207. ISSN 1929-0748
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Abstract
Background:
Cochlear implants provide hearing to approximately 750,000 people with deafness worldwide; these patients require lifelong follow-up. Care for adults with implants in the United Kingdom occurs at one of 19 centers, which may be far from the patients’ homes. In a previous randomized controlled trial, we successfully introduced person-centered care. We designed, implemented, and evaluated the following remote care pathway: a personalized web-based support tool, home hearing check, self–device adjustment, and upgrading of sound processors at home rather than in the clinic. The remote care group had a significant increase in empowerment after using the tools, and the patients and clinicians were keen to continue. We would now like to scale up these improvements as an option for >12,000 UK adults using implants; we are commissioning an independent evaluation of this intervention and rollout to establish if it achieves its aims of more empowered and confident patients; more accessible and equitable care; stable hearing; more efficient, person-centered, and scalable service; and more satisfied and engaged patients and clinicians.
Objective:
This study aims to evaluate the impact and rollout of a person-centered clinical care pathway via telemedicine for adults with cochlear implants in the United Kingdom, using both outcomes and process evaluation.
Methods:
This project will scale up and evaluate a person-centered long-term follow-up pathway for adults using cochlear implants through a personalized website, including a home hearing check, uploading photos of cochlear implant site, listening in noise and music practice, ordering of spares, questionnaires, and other resources. Both quantitative and qualitative analyses will be conducted, and they will be both an outcome and process evaluation.
Results:
As of July 2021, the trial is closed, and all data collection is complete. The evaluation report is expected to be published in December 2021, and the research data have not yet been analyzed.
Conclusions:
This project will present the results of the first scaling up of a remote care pathway for adults with cochlear implants in the United Kingdom.
Trial Registration:
International Standard Randomized Controlled Trial Number ISRCTN51668922; https://www.isrctn.com/ISRCTN51668922
International Registered Report Identifier (IRRID):
DERR1-10.2196/27207
| Item Type: | Article |
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| Additional Information: | Funding information: The authors thank the people with cochlear implants who gave so freely their time and experience to improve care for others and the cochlear implant centers who were willing to engage with new processes to help their patients. This work was supported by the Health Foundation Scaling Up Round 3 grant number AIMS ID 536535. The funder was not involved in the study design, collection, analysis, interpretation of data, writing of the paper, or decision to submit for publication. |
| Uncontrolled Keywords: | cochlear implants, hearing, deafness, telemedicine, patient-centered care |
| Subjects: | B600 Aural and Oral Sciences |
| Department: | Faculties > Health and Life Sciences > Nursing, Midwifery and Health |
| Depositing User: | John Coen |
| Date Deposited: | 27 Apr 2022 08:24 |
| Last Modified: | 27 Apr 2022 08:30 |
| URI: | http://nrl.northumbria.ac.uk/id/eprint/48986 |
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