Moorthie, Sowmiya, Hayat, Shabina, Zhang, Yi, Parkin, Katherine, Philips, Veronica, Bale, Amber, Duschinsky, Robbie, Ford, Tamsin and Moore, Anna (2022) Rapid systematic review to identify key barriers to access, linkage, and use of local authority administrative data for population health research, practice, and policy in the United Kingdom. BMC Public Health, 22 (1). p. 1263. ISSN 1471-2458
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Abstract
Improving data access, sharing, and linkage across local authorities and other agencies can contribute to improvements in population health. Whilst progress is being made to achieve linkage and integration of health and social care data, issues still exist in creating such a system. As part of wider work to create the Cambridge Child Health Informatics and Linked Data (Cam-CHILD) database, we wanted to examine barriers to the access, linkage, and use of local authority data. A systematic literature search was conducted of scientific databases and the grey literature. Any publications reporting original research related to barriers or enablers of data linkage of or with local authority data in the United Kingdom were included. Barriers relating to the following issues were extracted from each paper: funding, fragmentation, legal and ethical frameworks, cultural issues, geographical boundaries, technical capability, capacity, data quality, security, and patient and public trust. Twenty eight articles were identified for inclusion in this review. Issues relating to technical capacity and data quality were cited most often. This was followed by those relating to legal and ethical frameworks. Issue relating to public and patient trust were cited the least, however, there is considerable overlap between this topic and issues relating to legal and ethical frameworks. This rapid review is the first step to an in-depth exploration of the barriers to data access, linkage and use; a better understanding of which can aid in creating and implementing effective solutions. These barriers are not novel although they pose specific challenges in the context of local authority data.
| Item Type: | Article |
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| Additional Information: | Funding information: MRC Adolescent Engagement Awards MR/T046430/1. Medical Humanities Collaborative Award from the Wellcome Trust [Grant Number: 218025/A/19/Z]. SM and KP are supported by the National Institute for Health Research (NIHR) Applied Research Collaboration East of England (ARC EoE). KP is also funded by the National Institute for Health Research (NIHR School for Public Health Research (SPHR) (Grant: PD-SPH-2015). AM is funded through an NIHR Clinical Lectureship funded by Anna Freud National Centre for Children and Families. The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care. RD holds a Collaborative Award from the Wellcome Trust. |
| Uncontrolled Keywords: | Research Design, Trust, Linked data, United Kingdom, Humans, Integrated care, Population Health, Policy, Health informatics, Public health |
| Subjects: | B900 Others in Subjects allied to Medicine C800 Psychology |
| Department: | Faculties > Health and Life Sciences > Psychology |
| Depositing User: | Rachel Branson |
| Date Deposited: | 12 Jul 2022 15:55 |
| Last Modified: | 12 Jul 2022 16:00 |
| URI: | http://nrl.northumbria.ac.uk/id/eprint/49537 |
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