The Impact of the COVID-19 Pandemic on Informal Caregivers of People with Parkinson’s Disease Residing in the UK: A Qualitative Study

Rippon, Daniel, Hand, Annette, Dismore, Lorelle and Caiazza, Roberta (2022) The Impact of the COVID-19 Pandemic on Informal Caregivers of People with Parkinson’s Disease Residing in the UK: A Qualitative Study. Journal of Geriatric Psychiatry and Neurology. pp. 1-13. ISSN 0891-9887 (In Press)

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Official URL: https://doi.org/10.1177/08919887221135555

Abstract

Informal caregivers can experience various demands when providing care and support for People with Parkinson’s disease (PwP) in their own homes. The outbreak of SARS-CoV-2 and public health strategies employed to mitigate the spread of COVID-19 have presented challenges to the general populace on a global basis. The present study used a qualitative research design to explore how the COVID-19 pandemic has impacted informal caregivers in their role of providing care for PwP in their own homes. A series of 1:1 semi-structured interviews were conducted with 11 informal caregivers of PwP (M age = 72.64 years, SD = 8.94 years). A thematic analysis indicated that 1) vulnerabilities to COVID-19, 2) home maintenance & activities of daily living and 3) engagement with healthcare services were 3 themes that provided indications on how the COVID-19 pandemic impacted informal caregivers of PwP. The present study provides illustrations of how being an informal caregiver of PwP and being identified as high risk to COVID-19 can present challenges to the process of caring for loved ones who are also vulnerable to SARS-CoV-2. The results of the present study highlights the necessity to develop strategies to ensure that informal caregivers have the necessary resources to provide care for PwP in their homes and also maintain their own well-being in the post COVID-19 era.

Item Type: Article
Uncontrolled Keywords: informal caregiver, parkinson’s disease, Covid-19, caregiver burden
Subjects: B900 Others in Subjects allied to Medicine
C800 Psychology
Department: Faculties > Health and Life Sciences > Nursing, Midwifery and Health
Faculties > Health and Life Sciences > Psychology
Depositing User: John Coen
Date Deposited: 13 Oct 2022 07:44
Last Modified: 21 Oct 2022 10:30
URI: https://nrl.northumbria.ac.uk/id/eprint/50378

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