Co-design of an NHS primary care health check for autistic adults

Taylor, Helen, Ingham, Barry, Mason, David, Finch, Tracy, Wilson, Colin, Scarlett, Clare, Moss, Sebastian, Buckley, Carole, Urbanowicz, Anna, Raymaker, Dora, Seiboth, Charlotte, Lees, Rhianna, Garland, Deborah, Osbourne, Malcolm, Lennox, Nicholas, Cooper, Sally-Ann, Nicolaidis, Christina and Parr, Jeremy R. (2022) Co-design of an NHS primary care health check for autistic adults. Autism. p. 136236132211329. ISSN 1362-3613 (In Press)

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Autistic people experience more health conditions and earlier mortality. This study investigated views about a primary care health check for autistic adults to inform its design. Fifty-one people participated in consultation groups and interviews, comprising autistic adults (some with co-occurring intellectual disabilities), adults with intellectual disabilities, supporters and health professionals. Participants wanted the health check to cover physical and mental health and social functioning. They emphasised the importance of sharing information about individual needs and associated adjustments before the health check. They highlighted the need to change the way healthcare services communicate with autistic people, such as reducing phone contact and booking appointments online. They wanted individual choice in how the health check was completed, with video call or email offered alongside face-to-face. Participants raised the need for further training of primary care staff on autism, to highlight the diversity of experiences of autistic people and ways in which difficulties, such as pain, may present differently. Clinicians raised questions about the capacity of mental health and social care services to meet the additional needs potentially identified through the health check. This study represents a key step in the development and co-design of a UK primary care health check for autistic people.

Item Type: Article
Additional Information: Funding information: The author(s) disclosed receipt of the following financial support for the research, authorship and/or publication of this article: This study was funded by the UK autism research charity Autistica (London, UK) and the Peter Sowerby Foundation (London, UK) (grant number 7257).
Uncontrolled Keywords: autism, autism spectrum disorders, health check, health services, qualitative research
Subjects: B700 Nursing
B900 Others in Subjects allied to Medicine
Department: Faculties > Health and Life Sciences > Nursing, Midwifery and Health
Depositing User: Elena Carlaw
Date Deposited: 21 Dec 2022 16:53
Last Modified: 21 Dec 2022 17:00

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