A Seat Around the Table: Participatory Data Analysis with People Living With Dementia

Clarke, Charlotte, Wilkinson, Heather, Watson, Julie, Wilcockson, Jane, Kinnaird, Lindsey and Williamson, Toby (2018) A Seat Around the Table: Participatory Data Analysis with People Living With Dementia. Qualitative Health Research, 28 (9). pp. 1421-1433. ISSN 1049-7323

QHR_IDD_Methodology_accepted_1.pdf - Accepted Version

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Official URL: https://doi.org/10.1177/1049732318774768


The involvement of ‘people with experience’ in research has developed considerably in the last decade. However, involvement as co-analysts at the point of data analysis and synthesis has received very little attention – in particular, there is very little work that involves people living with dementia as co-analysts. In this qualitative secondary data analysis project, we (1) analysed data through two theoretical lenses: Douglas’ cultural theory of risk and Tronto’s Ethic of Care, and (2) analysed data in workshops with people living with dementia. The design involved cycles of presenting, interpreting, representing and reinterpreting the data and findings between multiple stakeholders. We explore ways of involving people with experience as co-analysts and explore the role of reflexivity, multiple voicing, literary styling and performance in participatory data analysis.

Item Type: Article
Subjects: L900 Others in Social studies
X900 Others in Education
Department: Faculties > Health and Life Sciences > Nursing, Midwifery and Health
Depositing User: Becky Skoyles
Date Deposited: 26 Apr 2018 07:45
Last Modified: 01 Aug 2021 12:51
URI: http://nrl.northumbria.ac.uk/id/eprint/34099

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